Children’s palliative care is an active and total approach to care, from the point of diagnosis or recognition, throughout the child’s life, death and beyond.
It embraces physical, emotional, social and spiritual elements and focuses on the enhancement of quality of life for the child or young person and support for the family...
(Source: Together For Short Lives)
There are estimated to be currently over 1300 children with life-limiting conditions living in Northern Ireland. Life-limiting conditions include conditions such as neurological and genetic disorders and life-threatening conditions such as cancer type diagnosis.
Children’s needs will change over time, often becoming increasing complex. Children’s Hospice provides a range of services which are flexible and responsive to these changing needs.
In essence, this means that how a family chooses to use children’s hospice services over time will change, for example the location of care may change or level of input may increase.
No matter how your child’s needs change, our commitment always remains the same; to ensure that at all times your child receives the highest quality care, provided by highly skilled staff, as close to how you would want to deliver that care yourself.
Most referrals are made by doctors or nurses, however parents, social workers or other professionals can also make a referral.
Children’s Hospice care is completely free to all children and their families who meet the criteria to avail of our services. Each year it costs over £3 million to operate and run children’s hospice services. Only 20% of this is funded by Government and therefore we rely heavily upon donations from the public, business and trusts to enable us to continue to provide the service to families.